Marc Guillonneau is only 17 years old, but since he was born he has been grappling with Netherton Syndrome, a rare genetic disorder that causes all of his skin to constantly peel. Aside from the physical discomfort, the disease also makes Guillonneau incredibly prone to bacterial infection since he doesn’t have a layer of skin protecting him from the outside world. Guillonneau’s immune system is then liable to kick into high gear to ward off these bacterial infections, but this can lead to sepsis, a condition that arises when the body’s immune response damages its own tissues and organs.
Sepsis can quickly become life threatening and antibiotics are usually used to treat it. But for Guillonneau, antibiotics are rarely effective for more than a couple of weeks at a time. This puts him in a dangerous position: If Guillonneau develops sepsis and his body doesn’t respond to new antibiotics, he will …
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